identifying information. A preliminary codebook was developed based on the
interview guide. Five study team members read three transcripts and developed a
codebook, which was then revised iteratively and used to code all transcripts.
Completed interviews were recoded accordingly. All interviews were double-coded,
and any conflicts in coding were discussed by the two coders, reconciled, and
finalized using QSR International’s NVivo 11 qualitative analysis
Software. Codes were refined as more data were analyzed. For each transcript,
the interviewer coded both the attributes of the interviewees and the dialogue.
Attributes of the interviewees included expanded or normal repeat length and
disclosure date. Analysis of opinion questions was done by using QSR
International’s NVivo 11 to produce code reports, which were then
analyzed to determine the distribution of responses.