The study period was from May 6, 2020, to October 8, 2020. The survey was created and the data were collected through Research Electronic Data Capture, a secure web application for building and managing online surveys and databases.10 (link) In collaboration with ThyCa: Thyroid Cancer Survivors’ Association, Inc, the survey was posted as a link on their homepage, www.thyca.org , and promoted in its free email newsletter. ThyCa is a nonprofit organization of thyroid cancer survivors, caregivers, and health care professionals, with over 85 000 subscribers. Responses were anonymously recorded, with a unique identifier code generated automatically for each participant through Research Electronic Data Capture. No tracking data were collected, and all data were self-reported, including demographic and clinical characteristics.
Research electronic data capture
Manufactured by REDCap
Sourced in United States
Research Electronic Data Capture (REDCap) is a secure web application designed for building and managing online surveys and databases. Its core function is to provide a user-friendly interface for collecting and managing data, while ensuring the security and confidentiality of the information gathered.
Automatically generated - may contain errors
Lab products found in correlation
Sas version 9, by SAS Institute (4 mentions)
Spss 21, by IBM (1 mentions)
Spss version 18, by IBM (1 mentions)
Statistical package for social sciences v 20, by IBM (1 mentions)
Electronic data capture tool, by REDCap (1 mentions)
Stata statistical software, by StataCorp (1 mentions)
Spss statistic, by IBM (1 mentions)
190 protocols using research electronic data capture
1
Thyroid Cancer Survivors Survey
2
Online Assessments for Intervention Study
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Study assessments were completed by youth and parents online through Research Electronic Data Capture,17 (link) a secure web-based data collection platform, at baseline before treatment allocation (T1), after completion of the 8-week intervention (immediately after treatment) (T2), and at 3-month follow-up (T3). As part of their assessments, youth completed online diaries through Research Electronic Data Capture for 7 days at each assessment period. Study staff contacted youth about completion of assessments only; both the app and web program include automated reminders to log in and complete intervention tasks. We provided gift card incentives after completion of each of the 3 study assessments.
3
Linking Danish Healthcare Registries
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All Danish residents are assigned a unique personal identification number (CPR) permitting data linkage of individual records between different governmental registries. Data regarding vaccination date and type was achieved through the Danish Vaccination Registry while comorbidities and hospital admissions were collected through the Danish National Patient Register. Lists of medication for cases were retrieved from the patient hospital records. SARS-CoV-2 PCR test results were obtained through the Danish national microbiology database MiBa (Statens Serum Institut, Copenhagen, Denmark). All data was entered into electronic clinical records using Research Electronic Data Capture REDCap which is hosted by OPEN (Open Patient data Explorative Network).
4
Retrospective Cohort Analysis of OI/IUI Cycles
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This study was a retrospective cohort analysis of OI/IUI cycles performed between 2011 and 2021 at the UC Health Center for Reproductive Health. There were 3712 OI/IUI cycles performed during this time frame, which were reviewed, of which the cycles included in this analysis represent a subset. Study approval was granted by the Institutional Review Board for the Protection of Human Subjects at the University in June 2021. All data were deidentified upon collection and patients were not asked to actively participate.
All data were obtained from Epic electronic medical records and stored in a database created with Research Electronic Data Capture (REDCap) hosted at the University of Cincinnati College of Medicine. REDCap is a secure, web-based application designed to support data capture for research studies, providing (1) an intuitive interface for validated data entry; (2) audit trails for tracking data manipulation and export procedures; (3) automated export procedures for seamless data downloads to common statistical packages; and (4) procedures for importing data from external sources.11 (link)
All data were obtained from Epic electronic medical records and stored in a database created with Research Electronic Data Capture (REDCap) hosted at the University of Cincinnati College of Medicine. REDCap is a secure, web-based application designed to support data capture for research studies, providing (1) an intuitive interface for validated data entry; (2) audit trails for tracking data manipulation and export procedures; (3) automated export procedures for seamless data downloads to common statistical packages; and (4) procedures for importing data from external sources.11 (link)
5
Physician Satisfaction Survey on EHR
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We used a random number generator to identify a random sample of 157 physicians from a master list of all MUSC providers. The quantitative data analyzed for this project was part of a larger EHR satisfaction assessment project at the university that also included qualitative analysis of physician interviews. The qualitative interview data is not included in this analysis. Ten information technology medical directors were tasked with the entire project; thus, the final sample size was selected based on the ability of these 10 physicians to collect the data including completion of a face-to-face interview about the current EHR product. We used the qualitative data from the face-to-face interviews to drive improvement processes at the institution; we did not use the qualitative data for this analysis. We used Research Electronic Data Capture (REDCap) (REDCap Consortium) software for survey administration and data collection. We distributed surveys by email through REDCap, and the responses remained anonymous. Nonrespondents received email reminders from area specific medical directors. We did not incentivize or distribute reimbursements for survey completion. Our institution’s institutional review board considered this project quality improvement.
6
Cystic Fibrosis Patients' TIP Usage Survey
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In this single-center, noninterventional, cross-sectional study, a web-based survey was administered to patients with CF (or their parents or caregivers). Participants were sampled consecutively at their regular CF care center visit at Boston Children’s Hospital. If patients met the study inclusion criteria, the investigator obtained informed consent electronically from all of the participants 18 years of age and over to participate in the study. Informed assent was obtained for all of the participants less than 18 years of age and a parent or caregiver provided informed consent electronically. The study protocol was approved and reviewed by the institutional review board of Boston Children’s Hospital.
The inclusion criteria for the study were: age ≥6 years with a diagnosis of CF, a history of P. aeruginosa lung infection, and the use of TIP during the 7 months prior to the survey. Patients aged 14 years or older self-completed the survey, whereas a parent or caregiver provided survey responses for younger patients. Eligible participants (or their parent or caregiver) completed the survey at the clinic on a tablet computer. Study data were collected and managed using Research Electronic Data Capture (REDCap) electronic data capture tools hosted at Boston Children’s Hospital.16 (link)
The inclusion criteria for the study were: age ≥6 years with a diagnosis of CF, a history of P. aeruginosa lung infection, and the use of TIP during the 7 months prior to the survey. Patients aged 14 years or older self-completed the survey, whereas a parent or caregiver provided survey responses for younger patients. Eligible participants (or their parent or caregiver) completed the survey at the clinic on a tablet computer. Study data were collected and managed using Research Electronic Data Capture (REDCap) electronic data capture tools hosted at Boston Children’s Hospital.16 (link)
7
Online Survey of Adults with NF1
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Individuals with a clinical diagnosis of NF1 were invited to participate in an online survey via advertisements in newsletters and social media groups of Australian support groups: Children's Tumour Foundation (CTF), Genetic Alliance Australia, the Genetic Support Network Victoria, Rare Voices, Syndromes Without a Name Australia, and the Genetic and Rare Disease Network. Respondents were required to be adults with NF1, or caregivers of children with NF1 (<18 years).
Participants without a diagnosis of NF1 were invited to participate as a control group via the CTF closed Facebook group, the Royal North Shore Hospital newsletter, and the University of Sydney's online Research Volunteer portal.
Recruitment for the study occurred 14 June 2019–28 February 2020. No identifying information was collected.
Study data were collected using Research Electronic Data Capture (REDCap) hosted at Royal North Shore Hospital (Harris et al., 2009 (link)).
Participants without a diagnosis of NF1 were invited to participate as a control group via the CTF closed Facebook group, the Royal North Shore Hospital newsletter, and the University of Sydney's online Research Volunteer portal.
Recruitment for the study occurred 14 June 2019–28 February 2020. No identifying information was collected.
Study data were collected using Research Electronic Data Capture (REDCap) hosted at Royal North Shore Hospital (Harris et al., 2009 (link)).
8
Peripheral Blood Analysis of HNSCC Patients
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Peripheral blood samples from de-identified HNSCC patients (n = 32) were obtained from the University of Cincinnati Medical Center. HNSCC patients included in this study were treatment-naïve and had a positive diagnosis of HNSCC by tissue biopsy (See Table 1 for a summary of patient demographics and Supplementary Table S1 for clinical information). Peripheral blood samples of 7 healthy donors (HDs, 4 males and 3 females, age range between 30 and 65 years) were collected from individual donors and from discarded blood units (Hoxworth Blood Center, University of Cincinnati). The demographics of the donors from Hoxworth Blood center were not available. Informed consent was obtained from all HNSCC patients and HDs. The data collected in the study were managed using the Research Electronic Data Capture (REDCap) tools licensed to the University of Cincinnati. Sample collection was approved by the University of Cincinnati Institutional Review Board (IRB no. 2014-4755).
9
Oncology Clinic Screening and Enrollment
10
Serological Study of COVID-19 Antibodies
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Participants were invited via letter including a personal access code; individuals that agreed to take part in the study signed a written informed consent and used their personal code to access online registration for the study visit. In case of study-related questions or technical issues, a hotline service was available. Online questionnaires were available from January 18th to February 6th, 2021. For participants that encountered difficulties in filling out the online questionnaires, study staff were available during the study visit to assist them. Study visits took place in one center located in Lausanne between February 1st and February 6th 2021, during which a locally developed serological test was administered, a Luminex assay detecting anti-SARS-CoV-2 IgG and IgA antibodies [24 (link)]. In case participants were unable to attend the study visit on-site, a home visit was possible by means of four mobile study teams. All data were collected and managed using the Research Electronic Data Capture (REDCap) tools hosted at Unisanté. REDCap is a secure, web-based software platform designed to support data capture for research studies [25 (link)].
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