A convenience sampling strategy was used with emphasis on recruitment of underrepresented groups such as Black and Indigenous populations as well as participants with a low level of educational attainment to obtain a representative sample of patients and families in the NICU. Participants were contacted while their infants were admitted to the IWK Health NICU, through the IWK Health perinatal follow-up clinic, and through representatives of local and national Canadian Premature Babies Foundation parent partner organizations. Informed consent was obtained from each participant prior to their respective interviews. Participants with limited understanding of English were excluded. The study was conducted virtually using recorded video-conference interviews on the Zoom platform (Zoom Video Communications).
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