The study was ethically approved in Sweden by The Regional Ethical Review Board, Uppsala (Dnr 2009/060) and by National Health Service Ethics committee in England. Information (oral and written) about the study was presented to the staff before commencing the study at specific staff meetings. If staff agreed to participate a consent form was provided by the first author of the main study and their written consent obtained. Mothers and fathers were given oral and written information about the study 1 day or more after the infant was admitted to the NICU. In those cases when the infant was critically ill, information was given when s/he had stabilised. All parents, except two mothers, gave written consent that they were willing to participate.
The data was gathered through participant observation [14 ] and supplemented by interviews. The researcher (first author) took field notes during the observations and the interviews were tape-recorded, when relevant. Out of the 600 h of field work, 300 h were direct observations and interviews. The interviews lasted approximately 45 min but ranged from 10 to 120 min. They were made during day and night shifts for 11 months in total. Some of the mothers were followed during the whole stay and interviewed several times.
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