Youth and their parents were recruited from an ambulatory diabetes program at a tertiary academic pediatric hospital. The hospital serves an urban and rural population of 1.3 million in Eastern Ontario, Canada; the diabetes program provides care for 850 children and youth with T1D. At the time of the study in 2013–2015, MDI was rarely used by children or youth in our centre. Since then, MDI has become the usual insulin delivery method from diagnosis onwards.
We recruited youth and parents who had told either their pediatric endocrinologist or pediatric diabetes physician during their regular diabetes clinic visit that they were considering a change in insulin delivery method, were capable of participating in the decision making process and were scheduled for decision coaching by one of our diabetes social workers which is a step in the process for youth in our clinic who are considering a change in insulin delivery method. To be eligible for this study, youth had to be under 18 years old with type 1 diabetes duration of at least 10 months, and they and their parents had to be able to read and speak English or French. No lower age limit was set for youth participants, as required by our Research Ethics Boards, provided the youth and parent(s) could participate in the consent or assent process. Family dyads (youth and one parent) and family triads (youth and two parents) were included. The study was introduced to youth and parents being scheduled for decision coaching by the administrative assistant for the diabetes team. A research assistant contacted those who expressed interest in the study. This contact was by telephone to assess study eligibility and explain the study in detail. Youth and parents, regardless of the youth’s age, who agreed to participate provided written informed consent, and assent by the youth if necessary, prior to the decision coaching.
We recruited youth and parents who had told either their pediatric endocrinologist or pediatric diabetes physician during their regular diabetes clinic visit that they were considering a change in insulin delivery method, were capable of participating in the decision making process and were scheduled for decision coaching by one of our diabetes social workers which is a step in the process for youth in our clinic who are considering a change in insulin delivery method. To be eligible for this study, youth had to be under 18 years old with type 1 diabetes duration of at least 10 months, and they and their parents had to be able to read and speak English or French. No lower age limit was set for youth participants, as required by our Research Ethics Boards, provided the youth and parent(s) could participate in the consent or assent process. Family dyads (youth and one parent) and family triads (youth and two parents) were included. The study was introduced to youth and parents being scheduled for decision coaching by the administrative assistant for the diabetes team. A research assistant contacted those who expressed interest in the study. This contact was by telephone to assess study eligibility and explain the study in detail. Youth and parents, regardless of the youth’s age, who agreed to participate provided written informed consent, and assent by the youth if necessary, prior to the decision coaching.
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