Participants without a diagnosis of NF1 were invited to participate as a control group via the CTF closed Facebook group, the Royal North Shore Hospital newsletter, and the University of Sydney's online Research Volunteer portal.
Recruitment for the study occurred 14 June 2019–28 February 2020. No identifying information was collected.
Study data were collected using Research Electronic Data Capture (REDCap) hosted at Royal North Shore Hospital (Harris et al., 2009 (link)).